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dreamgrl's avatar

I also do not have any colours, shapes, emotions attached to my pain. It’s just pain. I’ll admit I have recently become depressed but that’s 8 years after the pain started, after eventually realising this pain is going nowhere. You are not a failure btw, the healthcare system so badly wants chronic pain to be a physiological thing when it is clearly not.

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Arthritic Chick - Chronic Pain's avatar

Exactly that. It started wtih Lorimer Moseley and Explain Pain. He cast 'chronic pain' as a psych problem. He admited he was 'stealing' treatments for anxiety and depression and applying them to chronic pain. But he, and everyone who bought this BS, are wrong. But he has huge marketing dollars and somehow everyone thinks he's a guru. The followers and imitators have turned psych treatment for chronic pain into a huge industry...that makes a lot of money. Cos its always about money. Never about helping the patient.

I'm sorry that depression has hit. I remember I was same when I realised the pain was never going away. Its not easy. I think grieving is an essential step along the way. I hope you have support around you. It will get better. Reach out f you need Xx

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dreamgrl's avatar

Indeed. It’s ALWAYS about money. Thank you so much! Appreciate you! xx

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Trish Randall's avatar

Couch jail is a perfect description of what has been inflicted on law-abiding pain patients in your country and in mine. The most despicable part is that we aren't even given a fair trial, just assumed to be damaged individuals. And why? Because the "professional addicts" tell the medical establishment that the drugs "made" them do their criminal, selfish & nasty behavior. In the US, drug or alcohol use during the crime counts as a "mitigating factor" in criminal sentencing. Then in prison, they get "drug education" where they learn the narrative to tell that will keep them in drug court (where subsequent infractions are kept secret because those would hurt the drug court "results" statistics). There's also plenty of lucrative professional addict positions funded by federal, state and local grants - and only open to people with a "history of addiction."

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Arthritic Chick - Chronic Pain's avatar

Wow...so there is incentive to be a 'professional addict'. And of course, the statistics of the drug courts is more important than people who live with horrifically painful conditions getting actual relief! The more I learn, the more I learn every industry is corrupt :(.

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Trish Randall's avatar

Shockingly so! One example is. in the state of Oregon. If a person asks an MD for addiction treatment, that doctor is required by law to refer that person to an “addiction specialist” who may have had some months of training (the doctor, minimum 11 years). Shocking amounts of taxpayer money has been earmarked for “addiction treatment.”

Then there’s the drug courts. These are sold to the public as an opportunity for otherwise not bad people who got messed up “because of drugs” to be diverted from criminal court, and come out a year later with a clean record. Since it would look bad for the drug court to have “failures” these people;s subsequent drug infractions are not counted or prosecuted. But it's worse than that. In drug court, the defendant doesn’t have a defense attorney acting to question and oppose the state’s case. Instead, the so-called defense attorney and the prosecutor and the judge act as a unified “care team.” It’s sofar from constitutional that if the Constitution was a star, it would take light centuries to travel from there to the drug courts.

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Lynn's avatar

I'm American, in pain from botched gallbladder surgery 26 years ago, and now 20 years after that, back problems.

I'm also the opposite of you. Not into healthy eating, although I'll eat healthy foods as needed. Not into exercising. Do enjoy couch jail, (but only because it gives me time to crochet or play on my laptop.) Can't see the pain as a color, BUT can give you quite a few creative images for what it's like. (I used to write teddy-bear novels, when my brain worked better, so I'm the creative side, while you're the reality side. Nothing wrong with either side. Differences make the world go round.)

America passed the Pain Relief Act in 2000, and through that "medicine" created a new speciality, "Pain Management." And through that, they've decided they will treat pain if a shot in the back every three months can numb it for up to two months. Or if you're dying.

After 40+ tries of other medications, procedures, and the-latest, one thing helped me. 5 mg. of oxycodone 3-4 times a day. Still! Proof I'm not an addict, and yet, no one will prescribe it anymore for me.

It's not us. Healthcare has hit the Dark Ages where doctors simply except the lies given to them.

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Arthritic Chick - Chronic Pain's avatar

Could not agree more...doctors no longer treat pain! Dark ages indeed.

In the US, I understand that the DEA prosecutes and imprisons doctors who treat pain, and so I understand, to some extent, why doctors don't want to take this risk in the US. It's appalling and so very wrong, and absolutely abhorent...but it seems where the US is now.

In Australia, we have nothing like the DEA. Doctors can't be imprisoned, or even 'lose their licence'. They can be sanctioned and have their practice restricted, but that is NOT happening. Its all myth and smoke and mirrors. Apparenlty Oz docs are easily manipulated. All it took was a few letters from the Health Dept, and most GPs stopped prescribing opioids. And NONE prescribe over 100MME.

Its a terrible state of affairs, especially as you say, if your pain is not easily fixed with a (very profitable) injection or radiofrequency ablation. Or some other procedure that pain doctors can charge a bomb for...spinal cord stimulator, anyone?

We're even having more and more stories hit the media here, of people with terminal illneses being left to die in agony. Its gone too, too, far and doctors have abandoned their patients, and their first priority - relieve pain.

Sorry for hte rant...preaching to the converted...lol. I hope you get some relief. We all deserve it. Best wishes to you.

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Christine Sutherland's avatar

Neen I’m sorry, your doctor is crap. Incompetent. I actually can’t put that any other way.

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Arthritic Chick - Chronic Pain's avatar

Ya know what? I think that's perfectly put :)

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